Wednesday, July 23, 2014

7.23.14

Dear Sister L
and
Thank you for your reflections, Shelly!
You are both inspirational to me.
There are a lot of others who helped me along the way!
Thank You All!!



Monday, July 7, 2014

7.7.14

The Bullshit

Some of my favorite bloggers are already dead.  Lisa Lynch for one. Diva for another.  I was making a list of my favorite blogs to pass along.  Luckily I found one, Jen, who is still alive!!  She just took a break for a little while.  Like a year!!  I was sooo worried that  the fate would befall her, and then me.  Does that mean you should not blog? 

Lisa spoke openly about the Bullshit.  Mincing words or not.  My cousin S. taught me to say "cancer sucks"!!  It was so hard in the beginning !!  Turns out my friends and loved ones have lived (???) through the experiences in their extended families.  Now it just kind of rolls off the tongue.  So far, my hubby and sisters are able to say how We have Lived Through it.

Then there is Melissa.  She has risen above the fray.  She posts words and photos about LIFE, and her experiences traveling around and about meeting other TNBC and BC survivors!

Other friends are able to say the puns and double entandres and make us laugh...like her story about the radiologist who told her "WELL DONE" you have completed treatment....

Tuesday, May 27, 2014

5.27.14

tASK...

I was just writing a note to a friend, when I mis spelled something.  It made me think of two incidents.

I hope you don't mind my retelling the story as I remember it,

When my girlfriend first got married and purchased a home, her new husband found her in tears one day.  He asked her what was the matter, and she said, "I don't like having to clean the toilets!"  After that, he did that tASK,  I am sure that he was relieved that "that was all it was".

Communication.

Another non-family member is forever asking us to help him with tASKs  I usually say NO because it is in my nature to say no.  However, he is always there and is glad for the help.  He leads as much as possible, and participates.  Whenever I do say YES I feel good.  It takes baby steps.

Practice saying YES!

Sunday, May 11, 2014

5.11.14

mother's day with a small m

Today's sermon made me stop and think,
Many people have taken care of me, other than the "obvious" relatives

Oh, but I am not supposed to use names

One of my mother's closest friends Aunt S
my sister L who is a relative but is not my mother
Dearly departed neighbor M, who always voiced support in hard times

And people who have taken care of my children
Church members particularly come to mind
CCEW==>M==>GCCC
Confirmation Leaders and
Owl parents

There are people you wish you had a closer relationship with

And as we get older, do we become the one taking care of youngers?
Philosophical Sigh

Saturday, May 3, 2014

5.3.14a

Driver Ed

We went for a short car ride today through OW where L and E grew up.  We moved to CP in 1971 when Mom was already pregnant with baby sister.  But we did not know that yet.

The family home in OW was multigenerational, and there were three small wings with lots of entertaining area.  Thanksgiving and Christmas were always a big deal, and Grandma would rent tables and chairs and dishes and glassware and cloth napkins to that there was seating for everyone to have a sit down meal.  The property was on two acres, with a pond shared by several neighbors.  We really did have ducks for a short while and there was a gardener who would come with his rider mower.  Grandma drove a Lincoln Continental or a Cadillac.  Uncle R had an MG convertible.  We took the bus to school, North Side Elementary.  Neighbors nearby like the Fortunoffs had mansions.  We pretty much stayed to ourselves as the property was big and we were little. 

Later, Grandma sold the property (taxes were probably too high) and moved to a regular house in GC to be nearer to Uncle.  She still cooked for us, but most of the meals devolved into watching New Years or a sporting event on tv while some of the women helped to cook/chop/prep a big meal.  She maintained a fantastic garden by herself, and Mr. Larsen helped her to do errands when we were not available.

After Sister L. was old enough, Mom started working part time at Hamburg Savings Bank.  She also took us for tennis, skating and golf lessons among other things.  Eventually she chose NOT to have a station wagon and picked up a used Toyota Celica.  Mom!!

There are also side stories about Mom and Dad throwing lobster parties in our smaller backyard, having family BBQ's, letting me throw a few blow out high school parties (refer to Jimmy B), and other ones about Big Aunt Lucille and Uncle Tang, Aunt Sabina and Uncle Donald, and others who hosted us over the years.  Remember going to Joyce and Perry's house because we wanted to watch the Islander game on tv and they were the only ones who had Cablevision?

Cuzzinfest had its origins in those old days.  It all comes back to me now, driving around with my sons.  Now we are the adults.  Who woulda thunk it.


5.3.14

Positive Spin.

Some people can always put a positive spin on things.  Yesterday I had a short conversation with Church Friend R.  She is always upbeat!  How does she do that?

So, I have learned to word things a certain way when I speak with her.  Like, I can never complain about the boys when they are going to numerous church activites, school or work, or to the gym.  When they needed rides, we made it happen. 

Now, I am learning to ask more questions so that the boys don't try to pull the wool over my eyes. Open and frank discussion?  Call home if you need anything?  Well, at least "call your father!"  And this comes from a person whose line of work (law enforcement)  makes you see the world differently. 

Friday, May 2, 2014

5.2.14

Thoughts on a breast cancer book that I am reading:  A Breast Cancer Alphabet by Madhulika Sikka.  Because I read so many blogs online, I almost did not pick it up at the library, but it is a great survivor story and thoughts (sic) provoking, especially for a beginner blogger. She is a prominent news exec w National Public Radio NPR so her story is well written. 

Anxiety, Breasts, Cancerland, Drugs, Epiphany, Fashion Accessories, Guilt, Hair, Indignities, Journey, Kindness, Looks, Masectomy, Notebook, Odds, Pillows, Quitting, Reconstruction, Sex, Therapy, Un-, Warrior, You, Zzzzz's.  Listing the words just doesn't make any sense.  But, they make sense to me. 

LoLa used to be anxious with a "small a", going to Stewart Ave for that first time encouraged by good friend P especially due to Mom's bc history, and at that initial mammography when they said "you have to have a sonogram today" and quietly crying in the waiting room alone but with others, having that very first anxiety attack only to find out this was somewhat "routine" and here is your yellow slip to give to the desk on your way out ... next year call at least six months in advance to schedule both the mammography and sonogram on the same date.  Look at me now.

Foobs.  Years ago our already beautiful co-worker S. had a boob job, maybe it was for her 40th birthday?  She was the first person we ever knew to actually have this type of surgery.  Wow!!  Fast forward to the more recent past, co-worker T. was the most open of bc what? victims, patients, survivors? to have a mastectomy and foobs.  As forthcoming and open as a person could be T was a  role model and supporter for LoLa and harbinger of good things to come.  She was right, the expanders were a pain but in the end Doc B did a fine job.  That is , good enough for a government worker.  (Sister L is gonna kill me for that little inside joke.)  I am still a shy person and cringe at any discussion of the last proposed surgery: nipples and areola.  Who needs that?

Accepting help.  Beyond my hubby and rellies. neighbor and old family friend D. pitched in, big time.  It was all mysterious how she became involved in such a generous way to support the whole family.  I mention D. because she is the one who insisted on helping by providing us with many a meal, saying it felt good for her to be a blessing.  D. asked us what kind of food we liked.  She did research and tried out new recipes.  She tried to provide nutrition!!  Decorations!!  Love.  I learned to share the blessing and try to be a gift to others.  Thank you D. for helping me to heal without guilt.

Stop putting things off.  This one is a work in progress. Seeing the Cherry Blossoms in Washington DC.  Going to visit good friends B and B who live out of state.  What were we waiting for?  Co-worker KP figured this out after September 11th.  She retired and is leading the good life with the family and in good health!!

Rest.  Two years later I still need a huge amount of rest.  I also know where I am most comfortable.  At home!!  Keep her watered and fed, and as sister D's saying goes, "them will be apples". 

Record keeping.  Like this blog and notes.  This all started out with the realization that Mom had gone through this when she was 50 years old, and when she died at age 55 there were no medical records.  Nor were there many records about what she had gone through after her bc diagnosis since we were all too immature and self centered, both emotionally and physically absent from Mom and Dad's day to day life, diagnosis, medical issues and treatment for each.  Now we are just that ache of missing them particularly during the month of May when Mom died and Mother's Day.  Time heals all wounds.  But, now it is my turn....just disappear into heaven (like Mom with Jackie Onassis I must say) or leave a record?  Is this at all helpful to you at all Dear Reader?


Sunday, March 16, 2014

3.14.14

Tomorrow, Tomorrow

There may not be enough time in the future, so take ACTION now!  We always admired G. for being focused on planning and completing small but special day to day family activities.  We always admired E. for her around the world travels.  Do we have to copy what others like to do?

On the other hand, do people get recognized for their household organization on a regular day/week/sports season/special but regular ordinary things?  Cooking, cleaning, etc.  Does one area have more importance than another?

We have been given the gift of time.  What are we going to do with it?
We are starting with small steps, assignments from M. and The Group.
Have Fun.
Express Yourself.  Use Words.
Have Fun.
Don't just nod your head.
Don't say NO

But, we have already been doing that, the low key couple.  No Complaints.  No Whining.
Ever since we learned our last few lessons.  Instead: Time is of the essence.  Don't waste your energy on the small stuff.  Its real, folks!  Celebrate God's Gifts.  Try to count your blessings (though they are infinite)  Be Grateful!!

What was our life like one year ago?  Were do you want to be?

3.16.14b

Gratitude and Holiday Cards

What I mean to say is, why does it take me so long to say these things?
I am learning that it is all about verbal communication.  Great Aunt L. has tried to teach us to express our gratitude in writing.  It has not always worked, starting with her instructions about professional communication to one of the bosses for inviting us to his home for a group luncheon.   It has not worked with teaching the boys to write out thank you cards for their Confirmation and other gifts, large and small.  I do not have confidence that they even know how to address an envelope or purchase a stamp from the post office.  Old technology, letter writing.  Expected by the elders. 

We had learned several previous lessons about NOT putting things in writing.  Got into a bit of trouble over the years.  Then a friend's husband expressed gladness that we actually sent out Christmas Cards with notes attached. Which way do you people want it?  I have guilt guilt guilt that either people will throw our photos in the garbage, and that card with an envelope and a stamp takes up too much space in their immaculately clean world.  Who am I to say "here I am and this is my story"?  But then I get responses like "I love your card!  May I put it up on my bulletin board?" and this makes everything okay.  Additionally, I received replies from two of my college friends who took the time to REPLY and recognize my health issues.  Of course, this is a two way street and my own reply to the reply is sometimes too slow.  I admit it...

Regarding new technology, I am almost caught up on emails and facebook use, with a little bit of care.  I am still learning how to post photos.  Soon, I will forge into texting with my plain old ordinary hand me down cell phone.  But, not quite yet.  The more you communicate in today's day and age, the faster a response is expected.  (A minute has passed and I have not received a reply....)(Is she angry at me, she has not replied to my poke...)  That is my concern, since those of you who know me well know that my own very measured response can take much longer than expected, including hours, days, months or years!!

2.29.14b

Marching On

The snow and ice this season is beginning to get annoying!
My Good Friend E. and I watched a PBS show recently, a rerun of March of the Penguins.
This has kept me safe.  I relearned about taking care for the sake of family, the starvation and sacrifices that some make because it is i"in their nature". 
It reminds me that 18 years ago when I was pregnant with Pete, during winter 1995-1996 we lived in Coram and I was commuting to Mineola...drove in every single snowstorm (18 times) because I was young, had an Explorer (thank you A) and was saving my work vacation days for the family.
Look at me now!

2.29.14

My baby is 18 years old today...

March 1st.  I was in the bank today, and this is what the sign on the podium said:  Saturday February 29th.  "Is it leap year, or not?"  the couple ahead of me asked.  We could have used the extra day to catch up.  But then, it would not be my son's leap into adulthood.  If there were a pause, he would not be able to :  what??  buy cigarettes, register with Selective Service, or drive across the Throgs Neck Bridge legally.  Is our life much different?  Not at all, because we have come to cherish each day instead of waiting for "the special ones"  Does that rob us of a certain joy?  Seems like it keeps us on more of an even keel.  What do you think?

3.16.14

In The Bulb There is A Flower (Natalie Sleeth)

This hymn has become one of my favorites.  But today's sermon at church had to do with those people who are still living in darkness.  And, in conversation this past week, those of us with breast cancer AND our loved ones have been thrown in to a deep abyss.  The Vacation Bible School theme this past summer was "Trust in God".  It is hard for me to describe but these themes pull it all together for me, at least.  They are all related, don't you see?  It is difficult, like a slap in the face when some people put in the other sarcastic remarks.  But we don't have to.

Sunday, February 16, 2014

2.16.14b

Q: Have You Been Saved?
I don't know.  I think so.
My acquaintance G. said that is the wrong answer.
I should be confident.

Q: Am I Cancer Free?
The oncologist says I am.
I don't know.  I don't think so.
I should be confident, right?

2.16.14

Forecasting, Wish Casting, Now Casting and More.

We have already had our share of Winter 2014 snowstorms.  As you know, I closely follow the local weather as forecasted by Wonderful Weatherman Adam.  Sometimes, he goes up to two weeks in advance.  People are surprised that I "know" when it is going to snow.  I do need to pay attention.  I still feel like my right arm is too weak and I cannot risk having to dig the car out from being plowed in at the office parking lot OR having to scrape the ice off the windshield in case of freezing rain.  Its definitely NOT that we don't live close enough... I just realized I have used four snow days already, and it is only mid-February.  Another small snow storm is coming on Monday/Tuesday.  Unfortunately (1) it is a school vacation week and I am supposed to be providing office coverage and (2) there is a firestorm at work over some nonsense.  Last week, I was feeling a little bit "off" at work...Recurrence? (check myself) Am I sick?  Tired? Reading too many message boards and blogs at night?  Is is just winter doldrums?  is it the outside pressure which is resuming since I am "healthier" and less protected by co-workers?  is it the toxic environment at work?  OR is it the fact that I took four snow days already and I am starting to get backlogged?  Nature or Nurture?

Today's sermon had something to do with accepting what you do not know.  Is ignorance bliss?

Who needs any diagnostic medical tests.  Mammography.  BRACA, CAT/PET scan.  Is it really a big joke?  See you when I see you.  Weather forecasting?  Being Prepared?  Girl Scout? Emergency kit.   Y2K?  Snowmageddon.  Where do you draw the line?

No Worries.  Now Casting. 

Wednesday, February 5, 2014

2.5.14b

First World Problems.  I saved a postcard that I received some time back from a random church group.

2.5.14

Fleeting thoughts...I still attribute my incomplete thoughts to chemobrain.  Devoted Sis L does not believe in it.  I thought I was feeling better.  I thought I was thinking more clearly.  My new Friend J. posted today that life is fleeting like a fog.  There was a quote from the bible.  She said to embrace it.  Being at work is getting to be difficult, or is it just a challenge?  Hard to think and do there.  Is this what my upcoming months are going to be like?  I am still Getting in Tune. 

Thursday, January 23, 2014

1.23.14

The good, the bad, the ugly.  Office stuff.
If you had to choose a way to start your day and a way to end your day, which?  It should always end in a good way.  (Especially at home.  We learned that in Pre-Cana so many years ago.  Kiss Kiss.)
The highlight was, having a nice birthday lunch with Good Friend N and Good Friend J.
It ain't so bad being 51.

1.22.14

Wed.  A SNOW Day.  I am newly practicing my blogging, as egged on by My Guru, M.  It was a challenge just to set up the Google account, as I made a typo right away and it is very difficult to correct.  I will also have to get Devoted Sister L to help me set up this page, as it will be UGLY until then.  BTW you cannot use mobile to type the text.  What good will that be when the SPIRIT moves me at 3am?

The comments were that I should not be writing in abbreviations but isn't that the way to prove that I have modernized?  Just yesterday, someone referred to me as "an English major" like that is a sin!  LOLa